My experience of Clinical Trials in Bon Secours Cork Cancer Centre
“In November 2019 I was diagnosed with breast cancer. It was a devastating and terrifying time. I had two active young boys, a full busy life, and there was no room for cancer. But I couldn’t wallow in my grief for long, I had to focus on my future and getting well.
Not long after my diagnosis, Dr O’Mahony told me I may be eligible for a clinical trial. I would be offered standard treatment, as well as the trial drug Pembro. Having read the information about the trial, and with the support of my family, I decided to apply for the trial.
The evening I found out I was accepted for the trial was the first time I felt positive since my diagnosis. I felt incredibly lucky to be getting an additional line of attack. It offered me great comfort knowing I had this weapon in my armoury. Not only was I receiving the additional drug, but there were also more benefits to being on the trial. Meeting Evelyn every treatment day was one of them. She helped me navigate the unfamiliar cancer world, answered my endless questions, and organised appointments. She was by my side for my first infusion and with me at my last!
It was made clear from the beginning that my interests and welfare came first and if I had any concerns or no longer wanted to participate in the trial, I could leave at any time. The consistency in the care I received from Evelyn, and indeed all the team, helped during times where I felt particularly low and vulnerable. I felt heard and very much supported. Even throughout the uncertainty of COVID, the care I received was flawless.
There are cons to being part of the trial; it is a long term commitment, extra tests are scheduled, and treatment days are longer. I’ll have regular follow-ups in the Bon Secours for years to come. Currently, I have a trial follow up every 3 months. However, regular meeting with Dr O’Mahony and Evelyn gives me great comfort I’m being closely monitored. They are my safety net.
My trial is a blind study. I will never know If I was taking Pembro or a placebo but this didn’t concern me because I choose to believe I was getting the drug, and that my body responded well to it. I was honoured and proud my body played a small part in the future of cancer care. The only way to move forward is through trial. I hope that this small sacrifice will change the lives of cancer patients coming after me.
I would have no hesitation in recommending a clinical trial and wish to thank everyone for their exceptional care during my treatment.”
(Lisa, 2021)